Last week we attended the Timpanogos Storytelling Festival at Thanksgiving Point. It is such a fun, relaxing atmosphere listening to stories all day.
S + D + d + p + d
Monday, September 8, 2025
Timpanogos Storytelling Festival and Diana's soccer game
Saturday, September 6, 2025
Baby boy coming March 2026
Saturday, September 6th, 2025
Friday, January 5th, 2024
After family scripture study this morning, 4-year-old Diana offered the prayer for us. For at least the past year or two, Diana has included two things in almost every one of her prayers: “Please bless Mom’s cancer that it will go away,” and “Please bless Dad’s back that it will feel better.”
Recently, we told our children that Sam’s cancer has gone away (at least as far as any advanced scans can see) and now we need to pray that it will not return. So, in her prayer this morning, Diana changed her oft-repeated request to “Please bless Mom’s cancer that it won’t come back.” When she finished her prayer, we told the kids that because of Sam’s great doctors and the medicine Mom has been receiving, as well as Sam’s diligent healthy eating, and because of their many prayers on her behalf, Sam will likely stop receiving her infusions soon. In addition to other medications, Sam has received an infusion every three weeks for over four years. [Update: January 5th ended up being the date of Sam's final infusion.]
When she heard Sam doesn’t need the medicine anymore, Diana’s immediate and excited response was, “So, are you going to have a baby now?!” Diana knew Sam could not risk getting pregnant while she was receiving cancer treatments, for Sam’s sake and that of a baby. We laughed and avoided a direct answer to Diana’s question, talking instead about the need to make sure Sam stays healthy for a while after stopping her treatments.
9-year-old Douglas teared up when he learned Sam won’t have to go to the doctor so often. He’s a tender boy and there are no words to describe the love he feels for his Mother.
Following our scripture study, I scheduled two appointments at the Bountiful Temple for later that evening. I needed some extra inspiration from God for a couple of weighty matters:
1) Aetna (our insurance company) and the University of Utah’s Huntsman Cancer Institute (where Sam has all her cancer-related appointments) are currently in negotiations to renew their contract. If they do not reach an agreement by the end of this month, and if Sam continues her appointments at University of Utah medical centers, our medical costs will increase significantly. We have done our part researching the various options available to us and we need heaven’s help to know how to proceed. We are still hoping an agreement will be reached. [February 2024 update: an agreement was reached a day or two before the contract ended!]
2) Is our five-member family complete, or should we try to have another child? Over the past few months, as Sam considered whether she should stop her treatments, I began having thoughts that if everything remains positive with Sam’s health and she no longer needs the medications/infusions she has been receiving, perhaps we should consider growing our little family. Rightly or wrongly (but probably wrongly), I told God multiple times that if He wants us to have more children, then He better send some powerful promptings to Sam, because I would not ask my dear wife, who was diagnosed with Stage IV metastatic breast cancer, to put her life at risk by getting pregnant. “What if the cancer comes back while she’s pregnant?” I thought. What if this? What if that? What will people think? I thought about Doctrine and Covenants 30:1 and other scriptures where the Lord chastises someone saying, “Behold, I say unto you, [Daniel], that you have feared man and have not relied on me for strength as you ought.” (See also 2 Nephi 8:12-13)
Unbeknownst to me, God was talking to Sam about growing our family while He was talking to me about it. He simply needed us to talk to each other.
I went to the temple Friday evening where I was once again impressed by the Law of Consecration. Years ago I promised God that I would sacrifice my time, my talents, and everything else He blessed me with, to build up His kingdom on the earth. Having children is a significant part of building God’s kingdom.
But I’m happy with the size of our family! I’m comfortable. Two months from now, when Diana turns five, we will no longer have a car seat in our van. I’m thrilled about that! We stopped buying diapers two years ago. I have minimal disruptions to my sleep at night. I will be 45 years old this year. My body often feels 75 years old. At any given time, I have at least five family trips planned in my head. I want to take our family to France. I want to take our family to Hawaii. I want. I want. I want.
But what does God want?
I returned home after spending time in the temple. Later that night, after the kids went to their beds, I went into Douglas’s room to ask him why he teared up when I told the children Sam might be able to stop her treatments. He got tears in his eyes again as he told me how happy he would be if Mom didn’t have to go to the doctor so much. We talked about our shared excitement for Sam/Mom. I asked Douglas what he thought about having another sibling. He really wants a little brother. It warms my heart thinking about big-brother-Douglas doting on his little brother. Penny and Diana would be like little mothers to that boy, although they both want another sister.
Saturday, January 6th, 2024
We packed all day today. Tomorrow we fly to Florida for the children’s Christmas present: a Disney cruise.
At one point today, Sam and I were alone in our room. The children were playing downstairs. I told Sam about my exchange with Douglas last night. And then I told her about the impressions I’ve been having over the past few months, as well as my concerns. Sam shared some of the powerful feelings she’s had throughout the past year, and dreams she experienced related to having more children. I was hesitant to tell Sam about my impressions. I worry about losing my amazing companion and Mother of our children. And life is comfortable right now! Why shake it up? Sam was hesitant to share her feelings with me, worried, in part, that I would balk at the idea of having more children. I imagine God up there smiling as we worked up the courage to talk to each other, and smiling even more at the fact that a four-year-old’s excited question may have been the thing we needed to encourage us to bring up the topic.
Sam and I agreed there are plenty of unknowns in the near future. We don’t know if/when the cancer will come back after Sam stops her treatments. We don’t know if Sam, after all the medications she has taken into her body, will be able to get pregnant or handle a pregnancy. But there is one thing we do know: we cannot ignore the inspiration we have received from Above.
Friday, March 1st, 2024
This morning I accompanied Sam to her appointment with her oncologist, Doctor Buys. We talked about the plan for the coming months, when to schedule additional scans and how to monitor Sam's health post cancer treatments. And then we brought up the subject of having another child. We told Doctor Buys about the strong impressions we have received, separately, over the past months. Doctor Buys made it very clear that, professionally, she was obligated to tell us that getting pregnant would be foolish. She also recognized the importance of feelings and impressions, while reiterating that getting pregnant is not a good idea. If the cancer comes back during pregnancy, it will be very difficult to treat without harming mother and/or child. We left the visit undaunted. We will move forward with our plan unless we receive heavenly guidance to change course.
I feel the need to emphasize how much I, and we, appreciate Doctor Buys, lest anyone harbor any negative feelings towards her for expressing her professional opinion about getting pregnant again. For much of my adult life I have been skeptical of doctors and the medical establishment. I know they do much good, but like all businesses, I believe the medical establishment wants more business. Who doesn't want more money? More patients and more treatments = more money for the medical establishment. Doctor Buys, however, gave me hope. She and her team always took the minimalist approach. Don't do something (i.e. - surgeries, drugs, etc.) unless it is absolutely necessary. They listened to, and respected Sam's opinion throughout this process. Doctor Buys even admitted that she should have acted sooner when Sam reported the symptoms that eventually led to the discovery of the tumor in Sam's head. A doctor who admits making a mistake? Awesome. I have the utmost respect for Doctor Buys. I have been thoroughly impressed with her and with the Huntsman Cancer Institute in general.
Saturday, March 2nd, 2024
My father sends out interesting and uplifting emails from time to time. Today he sent out an email with an attachment entitled, "We walk by faith." The attachment contained the following lesson on faith from the life of Elder Boyd K. Packer. Is it a coincidence Dad sent this particular email the day after our visit with Doctor Buys? I think not.
President Boyd K. Packer wrote:
Some years ago I learned a lesson that I shall never forget. I had been called as an Assistant to the Council of the Twelve, and we were to move to Salt Lake City and find an adequate and permanent home. President Henry D. Moyle assigned someone to help us. A home was located that was ideally suited to our needs.
Elder Harold B. Lee came and looked it over very carefully and then counseled, “By all means, you are to proceed.” But there was no way we could proceed. I had just completed the course work on a doctor’s degree and was writing the dissertation. With the support of my wife and our eight children, all of the resources we could gather over the years had been spent on education. By borrowing on our insurance, gathering every resource, we could barely get into the house, without sufficient left to even make the first monthly payment.
Brother Lee insisted, “Go ahead. I know it is right.” I was in deep turmoil because I had been counseled to do something I had never done before—to sign a contract without having the resources to meet the payments. When Brother Lee sensed my feelings he sent me to President David O. McKay, who listened very carefully as I explained the circumstances. He said, “You do this. It is the right thing.” But he extended no resources to make the doing of it possible. When I reported to Brother Lee he said, “That confirms what I have told you.”
I was still not at peace, and then came the lesson. Elder Lee said, “Do you know what is wrong with you—you always want to see the end from the beginning.” I replied quietly that I wanted to see at least a few steps ahead. He answered by quoting from the sixth verse of the twelfth chapter of Ether: “Wherefore, dispute not because ye see not, for ye receive no witness until after the trial of your faith.” And then he added, “My boy, you must learn to walk to the edge of the light, and perhaps a few steps into the darkness, and you will find that the light will appear and move ahead of you.” And so it has—but only as we walked to the edge of the light.
(The Holy Temple, Deseret Book, 1980, 183–185)
From Sam - January 2024:
Promptings to have more children
Over the last 6-7 months, I have been receiving small nudges and promptings about having another child, or children. The purpose of this journal entry is to finally put into words what I have been feeling and thinking for months, and in some cases years. My breast cancer diagnosis caused me great distress in many aspects of my life, including not being able to have more children. My expectations and dreams always included a house full of kids, and while I did have three children, I was very upset that my diagnosis meant I would not be able to have more children. Not to mention confronting the bigger question before me: Would I live long enough to raise the three children God had already blessed me with? And while I tried to be realistic (“people with cancer don’t think about having children, they just focus on surviving...”) I couldn’t help but think what could have been if I didn’t have breast cancer.
To start, I will go back to January 2020. I had finished my chemo regimen (taxol, herceptin, and perjeta). I was given a one-month break, then resumed herceptin (a maintenance treatment given every three weeks via an infusion), and began taking tamoxifen (a commonly used oral drug, taken daily, to prevent estrogen-based breast cancers). I was very upset about taking tamoxifen because I knew it would put me in a menopause state of sorts (i.e. hot flashes, vaginal dryness, fatigue, etc.) and that women were often on tamoxifen for 5-10 years, which meant that there would be no chance of having children as long as I was on that drug. Reluctantly, I started taking tamoxifen, but wasn’t giving up on the idea of having more children.
I reached out to the research library at the Huntsman Cancer Institute for information about going off of herceptin and tamoxifen, and to see if there were any studies or information about women who chose to get pregnant after undergoing those treatments. In short, there is little to no information. Again, most women who get breast cancer are past childbearing years, and people who do get cancer don’t think about having more children. So, I had a discussion with my oncologist, Dr. Saundra Buys (about May/June of 2020). I asked her if it would be possible to go off my treatments to have another baby. She was kind, yet blunt in her response. She explained that my type of breast cancer (HER2+) was very aggressive and that she wasn’t concerned that I couldn’t get pregnant, but that the cancer would come back quickly if I did go off my treatments. She said if I really wanted more children, she would think about giving me three months to go off the treatment to harvest some of my eggs and then I could reach out to a surrogate mother to carry the baby. She also mentioned that even with that option, would I live long enough to raise that child?
I left the visit with her crushed. Her response wasn’t unexpected. It was me finally having to accept my reality. I had stage 4 breast cancer. God had already blessed me with children. So be grateful for the children I did have and accept that my life would once again go down a path different than what I expected. I would have the trial of trying to be grateful and finding joy in my circumstance despite the loss of good health, and desires being unmet.
As the months and years followed, I would have thoughts about having more children. I even looked into the possibility of adoption. But, again and again, I would remind myself that while wanting to have more children was a good desire, it just wasn’t in the plan for our family and that I should recognize my grief and move on. I finally donated Douglas’s baby clothes that I had held onto for about seven years. I cried as I folded those clothes, put them in a sack, and had them donated. I had the girls’ baby clothes donated as well. Getting rid of all the baby clothes, crib, and changing table was my way of demonstrating to myself and to the Lord that I had accepted that I would not be having any more children. I was trusting in God’s plan for our family and moving on. And yet, the desire to have another child remained unextinguished in the very back of my mind...
In December of 2020, I had a brain tumor surgically removed, followed by radiation. I had a brain metastasis. Later in July of 2022 I had another surgery to remove cancer that still lingered from the previous surgery. That was followed by more radiation. During this time, thinking about having more children was not even a question. The biggest concern was the cancer in my brain. In the rest of my body, the breast cancer was totally under control or gone. Could we get things under control in my brain?
After my surgery in July 2022, Daniel and I discussed the need for me to really up my game in eating better as a way to possibly help control the cancer and keep me healthy while on treatment. In August 2022 I started eating the “bean protocol” as taught by Karen Hurd. I have not been perfect, but I have been very disciplined and have experienced great results (e.g. increased energy, better skin, no more hot flashes). After six months on the protocol I started thinking about going off of tamoxifen. If I could go off of tamoxifen, could I possibly go off of herceptin? Could I give my body a break from all of these drugs?
Go forward a few more months to June of 2023. I ran into Lisa Lyons. Our boys were in the same tennis class. Three years had gone by since I last talked with her. I met her in December 2019 when I was going through chemo. We have similar cancer medical histories: HER2+ breast cancer, same chemo regimen, both on herceptin every three weeks, both diagnosed at 30 years old. She was diagnosed about three years before I was, and she had more problems with her heart, where I had the issues with the brain metastasis. As we visited, she told me that in the summer of 2020, she stopped getting the herceptin maintenance treatments. She was no longer taking tamoxifen either. She has not been doing treatment for over two years and has been doing great. After my visit with her, the wheels in my mind began spinning faster. Could going off my treatments really be a possibility?
Two weeks later (June 30, 2023), I had another visit with Dr. Buys in which she told me I could stop taking tamoxifen. During our visit, I had the intention of asking her if I could stop taking tamoxifen, but forgot to ask her about it. About 40 minutes after our visit, she called me and told me I could stop taking it that day! At that moment I knew she must have been inspired, because the Lord knew I was thinking about stopping tamoxifen. The fact that she called me and told me it was no longer necessary for me to be on it was a miracle! I stopped that day.
The next month, July 2023, I had another brain MRI which confirmed that the cancer was not growing back and that there were no new tumors growing. I had reached the one year mark after my surgery in 2022 without any recurring symptoms. YES! In October, I had another brain MRI and the results looked fantastic! With each good result, with me eating really well, and with no new or recurring symptoms, I started feeling more and more strongly that I should consider stopping my herceptin treatment. As I would think about going off of herceptin, I started to think more and more about the possibility of having another child.
BUT THAT IS CRAZY! People with cancer don’t think about having children. Plus, I had moved on! I had accepted that I would not be having children. And yet, the nudges and feelings became stronger. I tucked them away and decided to wait until my visit with Dr. Buys on December 15th. I wanted to float the idea of going off of herceptin with her to get a sense if that was a possibility. Remember the visit I had with her in 2020? It was very clear then that I was not to go off of treatment. However, aside from the stuff with the brain, my response to the treatment has been ideal. Could it be possible to stop my treatment?
I met with her on the 15th and asked her about stopping my treatment for 1-3 months in case my family wanted to go on a long trip to France. (I wasn’t going to mention that I was actually thinking about getting pregnant.) Dr. Buys, without hesitation, said I would be fine stopping treatment for that amount of time, and really, that if we wanted to talk more about stopping treatment all together, she would be open to the idea. I was pleasantly surprised and happy! Things were working out better than I had expected or dared to hope! Could it be that God would grant the desire of my heart? Could I have another child? At the end of the visit we agreed I would get another treatment in three weeks, another treatment four weeks after that, and another four weeks after that. In the meantime, I would have another brain MRI, mammogram, and echocardiogram. At my next visit with Dr. Buys in March, we would decide if I stop treatment all together. She may even have me do another set of CT or MRI scans (of the body) to have as a baseline.
It’s a mixed bag of emotions, because I really do want to go off my treatment and try to have another child, and yet at the same time, I am nervous that I could actually get what I have asked for and hoped for. This means I will need to embrace the uncertainty of going off of treatment. I will need to have those conversations with my doctors that I want to get pregnant (this means I won’t be able to get regular scans on my brain during pregnancy). I will need to try and explain to other people why a person with cancer is choosing to get pregnant. I will need to talk to my husband about the impressions I have been receiving. I feel very excited about the idea of having another child, but what would Daniel think? Could I ask my dear husband (who is 44 years old) to consider having more children? Even if he felt ok with the idea of me going off of my treatment, would he be ok about having another child at his age?
In the weeks leading up to my December visit with Dr. Buys, I prayed and fasted to know if I should go off of my treatment. I have received my answer. I feel strongly that I should. In the couple of weeks after my visit with Dr. Buys, I prayed to know if having more children is right for our family. I asked Heavenly Father to inspire and prompt Daniel in a way Daniel would understand, if it was right for us to have more children. I knew I needed to talk to Daniel, but I was afraid to do so. I felt like it was already a lot to go off of my treatment. However, how could I pray to have more children if Daniel wasn’t doing the same, or if he didn’t want to have more children? I could ask for more children, but I can’t force Daniel. If Daniel didn’t think it was a good idea, I wasn’t going to force the issue.
Right after Christmas, Daniel and I received notifications that our insurance, Aetna, is currently in negotiations with University of Utah Health Care (which includes the Huntsman Cancer Institute) and if an agreement is not reached by February 1st, 2024, I will no longer be able to get in-network care at the Huntsman Center. I called Dr. Buys' office to have my mammogram scheduled before the end of January so I could have that on file in case the agreement is not reached. I was able to get in on December 29th and my results came back looking great! This was another sign to me that I should move forward and get off of treatment. My next treatment is on February 2nd. If Aetna and University of Utah Health have not come to an agreement, I will not be getting my infusion. But even if they do, why wait? I have my brain MRI on January 23rd. If that result comes back clean, I know I need to discontinue herceptin. No more waiting around.
But how do I tell Daniel about getting pregnant? I knew he would be happy for me to go off of my treatment, but what about getting pregnant?
On Thursday, January 4th, I started fasting in the morning, and in the afternoon I was able to participate in two endowment sessions at the Bountiful Temple. The purpose of my fast was 1) to confirm (again) if I should go off my treatment, and 2) to ask for the Lord’s help in guiding the individuals involved in the Aetna insurance negotiations to be able to come up with an agreement before the end of January. I kept telling myself that I would fast later about having more children. First things first. However, my mind kept going to that, so I finally prayed over and over that the Lord would inspire Daniel in a way that was meaningful to Daniel. If this really was what the Lord wanted for our family, I needed the Lord to inspire Daniel.
The next morning, after scripture study, Daniel mentioned to the kids that because of their prayers on my behalf, I may be stopping my cancer treatments soon. Diana immediately asked, “So does that mean Mom is going to have a baby?” I smiled and thought, “Yes! I would love that!” But just chuckled and kind of brushed it off. I didn’t want to encourage Diana because I wasn’t sure what Daniel was thinking. In the past, the kids have asked why we didn’t have more kids and I explained that as long as I was still on my treatment, there was no way I could get pregnant. It would be harmful to the baby and possibly harmful to my health to stop treatment. But to have Diana respond so quickly...come to find out, Diana was prompted to say that.
Unbeknownst to me, the Lord had been working on Daniel. He had been prompting Daniel about the possibility of having more children. I would later find out that Diana’s question really got Daniel thinking more. He went to the temple later that day and felt confirmation that having more children would be a good thing, but just like I was afraid to talk to him about it, he was afraid to bring it up to me.
The next day, Saturday, January 6th, I was packing for our Disney Cruise trip. Daniel and I had a moment together in our room while I was packing. He brought up Diana’s question from the day before. He talked about the promptings he had been receiving, his visit to the temple the day before, and even a conversation he had with Douglas the night before about me stopping my treatment and whether or not Douglas would want another sibling. As I listened to Daniel, I felt relief! Relief that my “secret” wasn’t my own. That he had been feeling and thinking some of the same things I had. In short, Daniel explained that if and when I felt it was right to have another child, he would support me in that decision. We had a great conversation. I explained what I had been feeling for months, and more so in recent weeks. It was so wonderful to finally tell him what I was feeling. I am sure the Lord has been shaking his head at us, but I appreciate His patience and guidance as He has worked to bring us together on the same page.
Daniel and I are fully aware that there are many risks and unknowns if I go off of my treatment as well as get pregnant. We realize that we could feel completely right about having more children and then things could go “bad” (e.g. the cancer comes back, I die sooner, something goes crazy with my brain). We also know that we could do nothing and I could live 10-20 more years. In that time we could have had another child/children. So, for right now, we will see how my next brain scans look in January, May, and August. By July of this year, I will have gone two years without any issue in the brain. If things in the brain hold stable, I will feel more confident about moving forward with having another child. Also, I need to give my body time to rid itself of the cancer drugs. So, if Daniel and I do try to have another child, it may not be for 8-10 months.
It has been a lot to think about and process. Yet, I feel peaceful. I feel motivated to continue to eat well and keep myself healthy. I feel gratitude to the Lord for blessing me with healing. I feel gratitude to the Lord for inspiring Daniel and me in ways that are understandable to each of us, and inspiring our little Diana to speak words that would help us to have a conversation about the feelings and impressions we have received. There are still many unknowns ahead, but I know we can trust the Lord.
---The following is a list of miracles that have occurred that help me feel confident that going off of my treatment is a possibility as well as having another child:
*Dr. Saundra Buys is my oncologist--one of the best in the Western United States
*Dr. Randy Jensen is my neurosurgeon
*Dr. Lindsay Burt is my radiation oncologist
*Dr. Buys encouraged me NOT to get a mastectomy. The purpose of the surgery is to prevent the spread of the disease. In my case the cancer had already spread, so what was the point of the surgery? Because I didn’t have a mastectomy, I still have my breasts to nurse my baby.
*I was inspired to undergo a second brain surgery, rather than switch my treatment. If I had opted to switch my treatment rather than undergo a second surgery, I would still be on an oral chemo to this day. I would not be thinking about having more children.
*The second surgery did result in some vision loss for me, but I am still able to read and drive.
*I have had a great response to the herceptin treatment
*I have had great medical insurance coverage when I needed it. I would still like to see my doctors, but if an agreement is not made with Aetna and University of Utah Health Care by the end of the month, I am not too stressed. I have already talked about going off my treatment, so I don’t feel the panic of trying to figure out where I would get treatment.
*Daniel has been receiving promptings in addition to the promptings I have been receiving.
*My mother-in-law has inspired me to eat well and has guided me to resources that help me know how to eat better so my body can heal.
*The Lord has blessed me with healing via priesthood blessings, inspiration to know what treatments to undergo and what treatments to avoid, and the prayers and faith of many family members and friends.
July 2025:
We tried for the past year, without success, to have another child. That's not normal for us! When we tried in the past, Sam got pregnant immediately. Once again, we were slowly coming to the realization that growing our family may not happen. But why would God prompt us to try again? Were we wrong about the promptings? Was God simply giving us thoughts of more children in order to push Sam to stop her treatments for her own long-term health? Was the timing not right? We didn't understand.
Friday, July 18th, 2025:
I was in Washington, D.C. about to head to work when I received this image from Sam. A positive pregnancy test!
Sunday, August 3rd, 2025:
We surprised the children today with news of a new member of our family coming in March 2026. We decided to inform immediate family members and a few neighbors of the news, even though it's still early in the pregnancy, because Sam has not been feeling well and it has become increasingly difficult to hide the fact that she is pregnant. We initially wanted to wait to make an announcement until we learned the gender of the baby, but Sam didn't want people thinking the cancer came back and that was the reason for her fatigue and nausea.
After we made the video above, we sat at the table talking about our feelings and what this means for our family. Douglas surprised us when he tearfully remarked that he had been praying Mom would be able to have another baby ever since Diana was four years old. Diana is six years old now. The sincere prayers of a child are powerful.
Wednesday, August 27th, 2025:
Sam had her first visit with Doctor Silver today. He will see her through the pregnancy and deliver the baby. The visit went well and Sam is very happy with Doctor Silver. Among other things, they did some blood work and sent it to the lab. We should know the gender of our fourth child within a week or so.
Sam sent the following images and videos to me from the first ultrasound for baby #4:
It's very quick, but you can see the little heart beating in this one.
Wednesday, September 3rd, 2025:
Saturday, September 6th, 2025:
Jesper decided to fire confetti and blue powder into Maxwell's back.
And he was very happy about it!
A few weeks ago Diana told Sam she wanted to make a special treat for Sam on the sixth anniversary of Sam's cancer diagnosis. Today we made banana oatmeal muffins with help from Diana's cousin, Magnus.